Toolkit launched for progressive neurological conditions

NHS England has launched a new toolkit to support commissioners to improve services for patients with progressive neurological conditions.

The NHS RightCare Progressive Neurological Conditions Toolkit, which was developed in collaboration with NICE, the Motor Neurone Disease Association, the MS Society, the MS Trust, the Multiple Systems Atrophy Trust, Parkinson’s UK, PSPA and Sue Ryder, provides expert practical advice and guidance on how to address key challenges when commissioning services and treating people with conditions such as multiple sclerosis, motor neurone disease (MND), Parkinson’s disease, progressive supranuclear palsy and corticobasal degeneration.

NHS RightCare says that people with neurological conditions are currently experiencing delays in diagnosis and treatment, fragmented or unco-ordinated services and a lack of neurospecialist rehabilitation and psychosocial support. The aim of the toolkit is to identify priorities in care for those living with such conditions, and to assess and benchmark current systems to find opportunities for improving services and reducing emergency admissions.

For each neurological condition, the toolkit highlights several system improvement priorities, with key areas for focus and the action that need to be taken for each. For example, the system improvement priorities for MND are: implementation of the NICE five quality standard statements; increasing awareness of the signs and symptoms of MND; consistent access to multidisciplinary community-based care; timely access to specialist equipment and support; and advance care planning through specialist care co-ordinators.

The toolkit provides links to many useful resources, including NICE quality standards and guidelines, other relevant reports, research papers and guidelines, care pathways and case studies. The 83-page document can be downloaded from the NHS England website: england.nhs.uk/rightcare

 

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